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Bram Kuiper, PhD Founder / CEO / Clinical Psychologist
Dr. Bram Kuiper is a clinical psychologist, scientific entrepreneur and CEO of Tired of Cancer. Up until July 2017, Bram was the CEO of the Helen Dowling Institute for psycho-oncology and research. With over thirty years of experience in the field of psycho-oncology and in co-writing treatment protocols, he has now devoted his career to seeing the Tired of Cancer app help as many people as possible who suffer from cancer-related fatigue.
Door Vonk, MA. Founder / CCO
Door Vonk is a social entrepreneur and founding partner of Tired of Cancer, where she holds the position of CCO. While Door started her career at a bank, she has accumulated over twenty years of experience in fundraising, financial and communication management of social enterprises. She left her own advisory company after nine years to dedicate her full attention and skills to Tired of Cancer.
Jos Bregman MARKETING COMMUNICATIONS MANAGER
Jos Bregman is our Marketing Communications Manager. With 10+ years commercial experience in marketing strategy and marketing execution, he is responsible for implementing and executing the digital marketing strategy to reach as many people as possible who suffer from cancer-related fatigue.
Amy Rich Rosenblum MARKETING DIRECTOR US
Amy is our Marketing Director responsible for the U.S. market. She has spent over 10 years in the U.S. healthcare industry with a background in marketing strategy, development, and execution of healthcare initiatives. She is responsible for our launch planning, marketing partnerships and communications to generate adoption of the Untire app.
Atse Aukes, MSc. SR. PROJECT MANAGER
Atse Aukes is our all-round project manager. He is responsible for guiding the app’s development, our research project, IT legal matters, among other things. With a background in Business Administration, Atse has gained seven years of broad IT experience in the field of eHealth, specifically in the mental health sector. With full enthusiasm, he now puts all his skills to use to help make our app a success.
Peter Gielissen Advisor
Peter Gielissen is a multimedia and publishing entrepreneur and operates as advisor to Tired of Cancer. In the early days of the internet, Peter founded his first company that brought streaming technology to the Netherlands. Later, he founded a second company (20 FTE), Damocles Publishing, which was acquired by the global ICT company Lost Boys. He has over 25 years of experience within the (fast changing) multimedia business and he is still pioneering technical (digital broadcasting) and media business innovations (shared revenue business models). Peter is with Tired of Cancer because of its potential to innovate medical new media.
Laurens van Kampen Advisor
Laurens van Kampen is an experienced businessman, having worked the last 15 years for several major (international) companies as director and general manager. In his personal life he has been committed to non-profit initiatives in the field of psycho-oncology. He puts his strategic thinking and goal-oriented advice to use in the Tired of Cancer advisory board.
Henk van der Wal Advisor
Henk van der Wal runs a family-owned, asset based international transport company for more than 35 years and serves as an advisor to Tired of Cancer. In 2009, he decided to change the strategy of the company and created a virtual transport company, a so-called 4 party logistics company. This company is one of the biggest virtual transport companies in Europe. By using the best available software in the industry, Van der Wal’s second company – SmartWay Logistics – makes European transport more sustainable and transparent. Henk supports Tired of Cancer with his business background because he strongly believes, also from personal experience, that the tool will help people during difficult periods in their lives.
Karen van Rassel COMMITTEE OF RECOMMENDATION
Karen van Rassel has been involved with Lymphoma Coalition since its inception and CEO since 2010 and prior to that the ED of Lymphoma Canada since 2002. Before joining the healthcare sector, she was in the marketing and advertising industry for over 20 years. Karen has been involved with Tired of Cancer since 2014 because the LC Global Patient Survey points to fatigue as the number one issue with patients. This is a one of a kind support tool that will help patients understand that they are not alone and provide guidance and skills to help them with daily living.
Dr. Cobi Heijnen COMMITTEE OF RECOMMENDATION
Dr. Cobij Heijnen is one of the founding scientists in the field of psychoneuroimmunology. At MD Anderson Cancer Center, she seeks to understand the treatment of cancer-related stress, pain, fatigue and chemotheraphy-induced cognitive deficits, or chemobrain.
Prof. Dr. A (Ton) Hagenbeek COMMITTEE OF RECOMMENDATION
Dr. Hagenbeek has been working with cancer patients throughout his career and has specialized in malignant lymphoma/lymphnode cancer (both Hodgkin and non-Hodgkin lymphoma). “Cancer Related Fatigue (CRF) appeared to be a significant quality of life deteriorating phenomenon in (cured) patients in my hemato-oncology practice. Docters don’t ask their patients and patients don’t tell their docter , based on my own experience. Underlying reason for the docter : no idea how to handle CRF and for the patient : I don’t want to bother my docter… This unique app will help to change this unacceptable situation, providing improved perspectives for many thousands of patients worldwide who suffer from this undesirable side effect.”
Dr. Marije van der Lee COMMITTEE OF RECOMMENDATION
Dr. Marije van der Lee is head of the scientific research department at the Helen Dowling Institute. She also works as a cognitive behavourial therapist and healthcare psychologist at the Helen Dowling Institute. Dr. Van der Lee is involved in several e-health research projects in the field of cancer-related fatigue and hopes to see the Tired of Cancer app help many cancer patients to regain a good quality of life.
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Parents of a family with 2 children who recently completed their secondary schooling and were looking at moving from their 1950’s suburban family home into a new property that more adequately fulfilled their needs...

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A couple in their late 50′s are concerned that, as they near retirement, their superannuation may not be sufficient to enable them to maintain their lifestyle without selling their house...

Andy Sharon
Upgrading family home

Parents of a family with 2 children who recently completed their secondary schooling and were looking at moving from their 1950’s suburban family home into a new property that more adequately fulfilled their needs...

Michael Sally
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A couple in their late 50′s are concerned that, as they near retirement, their superannuation may not be sufficient to enable them to maintain their lifestyle without selling their house...

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Comment by Jamie + Lion posted on

hiya,

How do you enforce the limit? Do you have an automated tool for text analysis?

Cheers,

Jamie + Lion

Comment by Stuart Weitzman Womens Sal Loafers Flats Brown Patent Leather Size 11 M bAsybYFrPg
posted on

Thanks for your question. We don't currently have an automated tool for checking sentence length. However, it might be something we look at in the future.

We encourage people to use tools like Hemingway (www.hemingwayapp.com) to check the readability of content. This highlights both long and complex sentences.

We also carry out regular spot checks on content, which involves checking how closely it follows GOV.UK style and principles. This helps us monitor content quality, and long sentences are generally counted as errors. However, we try to be consistent rather than uniform (www.gov.uk/design-principles#ninth), which means we understand the need to be flexible.

Hope this helps Sara

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Comment by Cis posted on

Just to prove that I have read, rather than scanned, this article, I am going to be picky.Your fifth paragraph is a bit mixed up because the statistics are not comparable. "Writing guru Ann Wylie describes research showing that when average sentence length is 14 words, readers understand more than 90% of what they’re reading. At 43 words, fewer than 10% do."

Do you mean that when average sentence length is 14 words, 100% of readers understand more than 90% of what they are reading? Or do you mean that when average sentence length is 43 words, readers understand less than 10% of what they are reading?

Cheers Cis

Comment by Helen posted on

I was interested to read this paragraph, and was immediately struck by the fact that the statistics didn't look right: "Writing guru Ann Wylie describes research showing that when average sentence length is 14 words, readers understand more than 90% of what they’re reading. At 43 words, fewer than 10% do." But looking at Ann Wylie's original article, what she actually says is: "Even at 14 words, they could comprehend more than 90 percent of the information. But move up to 43-word sentences, and comprehension dropped below 10 percent." Isn't Wylie saying that only 10% of the *information* is comprehended, not that only 10% of the people understand it (which is what your piece suggests)?

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The University of Georgia

Citation

Rieber, L. P. (1996). Seriously considering play: Designing interactive learning environments based on the blending of microworlds, simulations, and games. Educational Technology Research Development , 44 (2), 43-58

Note : The following is a 'pre-publication version' not reflecting minor revisions made in the final manuscript published in ETRD. This web-based version should not be circulated. I do not publicize this web site and only use it privately for use in my teaching.

Abstract : Little attention has been given to the psychological and sociological value of play despite its many advantages to guiding the design of interactive multimedia learning environments for children and adults. This paper provides a brief overview of the history, research, and theory related to play. Research from education, psychology, and anthropology suggests that play is a powerful mediator for learning throughout a person's life. The time has come to couple the ever increasing processing capabilities of computers with the advantages of play. The design of hybrid interactive learning environments is suggested based on the constructivist concept of a microworld and supported with elements of both games and simulations.

The field of instructional technology has witnessed tremendous growth in research and development of interactive multimedia learning environments in recent years, especially computer-based environments (e.g. hypertext/hypermedia; examples include Blanchard Rottenberg, 1990; Jonassen, 1991a, 1992; Locatis, Letourneau Banvard, 1989; Marsh Kumar, 1992; Yoder, 1994). At the same time, there has been increased openness in the field to consider the influence of a constructivist philosophy of learning on instructional design decisions (Duffy Jonassen, 1992). Researchers and developers are struggling to find innovative ways to exploit the interactive potential of the learning environments afforded by computers while remaining consistent with psychological and philosophical beliefs about how people learn and the practicalities of learning in schools and the work place (Hannafin, 1992; Hannafin Rieber, 1989a, 1989b). Given the serious work and thought evident in these areas, it is somewhat surprising that one of the most fundamental and important concepts of human interaction has received so little attention by our field - play. Why this is so is unclear. Perhaps it is because the word "play" can invoke so many misconceptions. For example, play is traditionally viewed as applying only to young children. Play seems to be something you have to give up when you grow up (Provost, 1990). There is also a sense of risk attached to suggesting an adult is at play. Work is respectable, play is not. Another misconception is that play is easy. Quite the contrary, even as adults we tend to engage in unusually challenging and difficult activities when we play, such as sports, music, hobbies, and games like chess (though adults may balk at using the word "play" to describe these activities) (Csikszentmihalyi, 1990). Likewise, children's play is an engaging and deliberate activity in which they devote great effort and commitment. Another misconception is that the activity of play is irrelevant or inconsequential to either formal or informal learning. These misconceptions are all unfortunate because the extensive research on play with children and adults in anthropology, psychology, and education indicates that play is an important mediator for learning and socialization throughout life (Blanchard Cheska, 1985; Csikszentmihalyi, 1990; Provost, 1990; Yawkey Pellegrini, 1984). Given the range of open-ended explorable environments that can be constructed with computers, time has come to revisit the almost alarmingly simple, yet powerful construct of play and to legitimize play's role in the field of instructional technology. The purposes of this paper are to briefly review the theoretical and conceptual foundations of play and to explore its relevance in the design of interactive multimedia. The attributes of three well known learning environments (or strategies) consistent with play - microworlds, simulations, and games - will also be reviewed. A careful blending of their attributes offers promise in guiding the design of interactive learning environments where structure and motivation are optimized without subverting personal discovery, exploration, and ownership of knowledge. In other words, learning environments that encourage people to play.

Consciousness board

Interestingly, it is much less obvious that the tradeoff in Part 2 is “worth it.” In fact, it is unclear what “worth it” would even mean in this context. Our own behavior for trading between pleasure and suffering seems to be driven by factors that don't just correspond to the intensity of the suffering or pleasure in question; factors such as cravings for pleasure (that would counterfactually result in unpleasantness, e.g. if one were to remain in the shade and consequently became more and more hot, sweaty and bored), or by preferences for adventure, for accomplishments and meaning in life, or simply for novel or exciting activities. When such external factors are removed and we are only looking at “raw experiences” rather than experiences embedded in the context of people’s lives as a whole, our intuitions regarding the appropriate exchange rates may change drastically, and many reasons (cravings, desire for novelty, meaning, adventure, etc.) for why one might be tempted to accept (torture-level) suffering in the intrapersonal case simply disappear . In the impartial or altruistic context, when evaluating whether to instantiate certain (packages of) experiences or not, there seems to be an especially strong case for never bringing about torture-level suffering, where the person moment in question would be left uncompensated and wanting its suffering to be terminated at all costs. SATUKI Adult Womens Pull On Hidden Heel Wedge Casual Canvas Shoes Fashion Sneakers A Umy1uMNmWP

This suggests that even for people who might be inclined to accept the bargain described above for themselves, it remains an open question whether they should apply the same exchange rate for the impartial or altruistic context. The two modes of evaluation, intra- versus interpersonal, differ in interesting and potentially relevant respects.

Views that incorporate this intuition: The intuition that torture-level suffering cannot be counterbalanced is strong in many people. It is present in the widespread belief that minor pains cannot be aggregated to become worse than an instance of torture. 7 Among consequentialist ethical systems, it is incorporated by threshold and consent-based negative utilitarianism and in (maximin) prioritarianism. It likely also contributes to absolute prohibitions against torture in deontological moralities. Finally, the intuition is part of philosophical works of fiction, such as Ursula K. LeGuin’s short story The Ones Who Walk Away from Omelas , Converse Mens All Star Chuck Taylor M7652 85 DM OpticalWhite yVIgJJ
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A widespread view, especially in non-Western traditions, is that “happiness” consists of the absence of suffering. According to this view, not only pleasure, but also tranquillity or contentment are amongst the best experiences (Gloor, 2017). We pursue pleasures because without them, we (usually) develop cravings for these pleasures. And these cravings constitute a form of suffering or dissatisfaction , i.e. of consciously wanting the current experience to be different . If a state is entirely free of cravings, there is a sense in which it can be considered perfect. Subjectively at least, the immediate, internal evaluation in such a state concludes that nothing needs to be changed. Accordingly, pleasure then carries “mere” instrumental importance, because flooding the mind with pleasure is one of several ways to (temporarily) get rid of cravings. Quoting from the paper on Tranquilist axiology :

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